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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.
April 8, 2025
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A MyLupusTeam Member

If these nerve pains are really persistent or bothersome, it's worthwhile asking your doctor about gabapentin, which relieves it. I've also had this rarely, but it hasn't hung around long enough for me to consider taking anything for it. I hope you are all free of this pain soon!๐Ÿ˜˜

April 9, 2025
MyLupusTeam

Yes, many people with lupus experience stinging or sharp pain on the side of their head. This sensation can be caused by nerve damage that occurs when lupus triggers inflammation of the nerves or surrounding tissues. When the damaged nerves are near your head, it can create tingling or shooting pain on one side of the Show Full Answer

Yes, many people with lupus experience stinging or sharp pain on the side of their head. This sensation can be caused by nerve damage that occurs when lupus triggers inflammation of the nerves or surrounding tissues. When the damaged nerves are near your head, it can create tingling or shooting pain on one side of the scalp, a condition known as occipital neuralgia. Several MyLupusTeam members have reported experiencing similar symptoms, describing it as stinging, pricking, or biting sensations. This is often related to peripheral neuropathy, which happens when lupus causes inflammation that damages the protective coating around your nerves. While these sensations can be concerning, they're a known part of living with lupus. It's important to discuss these symptoms with your rheumatologist, who can help develop a treatment plan focused on managing the underlying immune response.

April 8, 2025
A MyLupusTeam Member

Charlene and others, please be sure to see your doctor if your pains persist or worsen. In some cases, a brain scan may be needed to ensure nothing else is going on, though fleeting pains that come and go quickly and are sharp and stinging are very likely nerve-related.

April 10, 2025
A MyLupusTeam Member

@A MyLupusTeam Member.. Happy Wednesday! I get that stinging sharp pain too, just comes out of nowhere. Like @A MyLupusTeam Member and @A MyLupusTeam Member mentioned, I have lots of inflammation as well which can contribute to this type of pain. Hope you get relief soon, hang in there! ๐ŸŒธ๐ŸŒธ

April 9, 2025 (edited)
A MyLupusTeam Member

Hi Charlene, I also have this and it just comes out of nowhere. Like Journey2 I'm full of inflammation. At times I was convinced there was a bug living in my ear(super creepy!). The head pain, creepy crawlies, bloating,etc. are due to these never ending flares for me personally. I wish I had an answer for you, but I have a tendency to blame lupus for everything & just put up with and ride out symptoms. I hope you find relief soon!

April 9, 2025

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