@SherronFreier--I find it helps me to stay focused on today as much as possible. Early in my forty years with lupus, I also worried about what was coming, but I realized that stress was making me worse!

Congrats to all who are working full-time!

I worked full-time from age 23 to 50 (including my medical training), more hours than in full-time work. At age 50, I had a severe flare requiring chemotherapy and transfusions, and have only been able to work doing minimal telemedicine on demand since.

PLEASE BE CAREFUL, all who are working full-time. Ensuring that you're getting adequate rest, UV protection, a healthy diet, and keeping stress levels low is key. If you are becoming fatigued and not recovering with sleep, please start considering a medical leave, part-time work, disability--whatever is necessary to avoid major, disabling flares.

I cannot do full time but I do work part time and full time at home on the farm. Sometimes I look back and wonder how I made through the week

Hello Nick! I would love to be able to work remotely. I've tried for years to find a legitimate work-at-home job with no success. I have been a paralegal for 30+ years and also went to law school and passed the bar. I was able to work only a year as a practicing attorney. It just seems like I could do some document prep for all the legal papers that need to be produced in a lawsuit. I will continue to try though!
BTW, I added you to to my team. I hope you will add me to yours!
Gentle Hugs,
Becca

I work full time, but about 5 years ago I had to transition to a remote/ hybrid position. Physical labor as a IT network project manager became to hard to recover from. But working in a numbers driven job is more stressful mentally. so I gave up one pain for another. Regardless of the job, those FMLA papers need to be in your file.