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A MyLupusTeam Member asked a question 💭
Port Saint Lucie, FL
February 14
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MyLupusTeam

Are you experiencing mouth sores with lupus?

Mouth sores are a common symptom affecting between 8% and 45% of people with lupus. They can appear during flares or even when your disease is inactive. These sores typically show up on the inner cheeks, lips, roof of the mouth, or lower lip.

What they look like
- Reddish spots Show Full Answer

Are you experiencing mouth sores with lupus?

Mouth sores are a common symptom affecting between 8% and 45% of people with lupus. They can appear during flares or even when your disease is inactive. These sores typically show up on the inner cheeks, lips, roof of the mouth, or lower lip.

What they look like:
- Reddish spots with a white halo and white lines spreading from the center
- White or silvery patches with redness around them
- Sometimes called discoid lesions when caused by active lupus

What they feel like:
Some people experience no pain at all, while others have severe discomfort with burning, tingling, or irritation. A MyLupusTeam member shared: "Mouth sores are very painful and inhibit eating and drinking."

What causes them:
- Active lupus or lupus flares
- Medications like methotrexate, NSAIDs, or immunosuppressants
- Sjögren's disease (common in people with lupus, causing dry mouth)
- Poor oral hygiene

Management strategies:
- Use numbing agents before eating
- Try saltwater rinses (half teaspoon salt in warm water)
- Consider lysine or folic acid supplements (check with your rheumatologist first)
- Maintain regular dental checkups
- Use desensitizing toothpaste and soft-bristled brushes

If your mouth sores don't improve or affect your daily life, talk with your healthcare provider about treatment options.

February 14

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