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February 19
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MyLupusTeam

Is it possible that you don't have lupus after seeing a rheumatologist?

Yes, there's definitely a possibility. Lupus can be challenging to diagnose because several conditions can produce similar symptoms, which is why it's sometimes called "the great imitator."

Your rheumatologist may need to rule out other conditions that Show Full Answer

Is it possible that you don't have lupus after seeing a rheumatologist?

Yes, there's definitely a possibility. Lupus can be challenging to diagnose because several conditions can produce similar symptoms, which is why it's sometimes called "the great imitator."

Your rheumatologist may need to rule out other conditions that can look like lupus, such as:
- Fibromyalgia
- Rheumatoid arthritis
- Sjögren's syndrome
- Hashimoto's disease

This process of ruling out similar conditions is called differential diagnosis. Sometimes it requires time and repeated tests before confirming or ruling out lupus. Your diagnosis may not be established during the initial visit.

It's also possible to have a condition called undifferentiated connective tissue disease, where you experience some lupus-like symptoms but don't meet all the criteria for a full lupus diagnosis yet.

If you're uncertain about your rheumatologist's assessment, consider asking them:
- What specific criteria am I missing for a lupus diagnosis?
- What other conditions are you considering?
- What symptoms do and don't appear in my test results?
- Should we continue monitoring or do additional testing?

If you don't feel comfortable with this doctor's approach or explanation, you have the right to seek a second opinion from another rheumatologist.

February 19
A MyLupusTeam Member

Omgosh sweetie if I had a dime for Everytime I was told that well let's just say I'd be living in a one level beach house with 70 degree temp all year round. I certainly hope you don't have it but blood work is yes I do this month and then no markers hit next time so it makes you feel crazy at times when 10 Drs tell you yes I have SLE and then 5 Drs will say you do not have SLE. It's such a battle mentally that's for sure I'm now on year 16 :(

February 19
A MyLupusTeam Member

Anita I was diagnosed and treated for lupus for 20plus years. My rheumatologist retired and I went to a new one who told me he was not convinced I had lupus. He said he knew I had some type of connective tissue disorder. But he continued with same drug regimen and said it was working well so he wasn’t going to change it. He didn’t explain it well to me at all. He retired and the drs I am seeing now has changed my diagnosis on my records from lupus to undifferentiated connective tissue disease. This time explaining what that meant. So after 26 years I guess it’s actually not lupus but I still have issues that indicates there is some type of autoimmune condition. I just pray that it stays as well controlled as it has all these years. Let us know if you find out any additional information about your condition.

February 19
A MyLupusTeam Member
February 19

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