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I have lupus affecting multiple organs, especially my kidneys, and I've been sent the hospital for IV fluids so many times recently, and I'm going to be sent again if my next test results say I'm still dehydrated, my electrolytes are low. I think maybe because of my gastropereses, but reglan isn't helping, does anyone have any tips for staying hydrated? I'm missing so much work because of this :(

May 22
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A MyLupusTeam Member

I am just coming out of a bout of gastroparesis and dehydration. For several days, I set a timer for 10 minutes and sipped 2 tablespoons of electrolyte water all day long and if I was awake at night. It kept me out of the hospital for a few days.

May 22
MyLupusTeam

Why is staying hydrated so hard when lupus is affecting the kidneys, even when drinking plenty of water and electrolytes?

This is such an exhausting cycle to be stuck in, and missing work on top of it makes it even harder. With lupus nephritis, the kidneys struggle to properly balance water and electrolytes, which can make Show Full Answer

Why is staying hydrated so hard when lupus is affecting the kidneys, even when drinking plenty of water and electrolytes?

This is such an exhausting cycle to be stuck in, and missing work on top of it makes it even harder. With lupus nephritis, the kidneys struggle to properly balance water and electrolytes, which can make it genuinely difficult to stay hydrated no matter how much you drink. It's not just in your head! A few things worth discussing with your nephrologist and care team:

- Fluid timing β€” Spreading fluid intake evenly throughout the day rather than drinking large amounts at once may help absorption
- Food-based hydration β€” Fruits and vegetables with high water content can contribute to hydration more gently
- Avoid dehydrating foods/drinks β€” Salty, acidic, or dry foods and alcohol can worsen dehydration
- Phosphorus and potassium binders β€” If electrolyte imbalances are ongoing, your doctor may consider whether binders could help manage what your body absorbs
- Supplement review β€” Low electrolytes may point to a need for specific supplements, but always confirm with your doctor first since some can interfere with medications One important caution β€” with lupus nephritis, drinking *too much* water can actually be dangerous if fluid is building up rather than being filtered properly. Your nephrologist is the best person to set a safe daily fluid target tailored specifically to your situation.

Given how complex things are right now, pushing for a full medication and supplement review at your next appointment sounds really worthwhile. You deserve to feel better and get back to your life! πŸ’™

May 22

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