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A MyLupusTeam Member asked a question πŸ’­
Omaha, NE

Hey gang,

So my flares are tied to my hormones. I flare at least once a month. Lately my menopause symptoms have increased and my Lupus symptoms have followed suit.

Joint pain and swelling are my main symptoms. I am also dealing with nerve issues due to increased inflammation. I have had sharp stabbing pain in the cartilage of my left ear. An electric shock feeling in my right foot and pain that feels like my blood is pulsing in line with my heartbeat.

Anyone have tips or tricks that helped you… read more

May 26
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Answer Summary

Members responded to a question about managing lupus flares during menopause with both emotional support and practical insight, agreeing that... Read more

Members responded to a question about managing lupus flares during menopause with both emotional support and practical insight, agreeing that flares tend to get significantly worse during this hormonal transition. Several members shared their own experiences with increased joint pain, rashes, migraines, nerve pain, and heart rhythm changes, while noting that treatments like low-dose prednisone, SSRIs, gabapentin, and omega-3 supplements had offered some relief. A recurring theme was navigating hormone-related decisions carefully, especially for those with a family history of breast cancer, and leaning on community connection to cope with the challenges of this stage of life.

A MyLupusTeam Member

Hello everyone and many blessings. Calli I know exactly what you are going through. I have experience all these symptoms. Stress will make them symptoms worse. Depression as well. I have been taking the vitamin called Mega Red you can get it fom Walmart,CVS and target. I take one a day with my meds and honestly all the symptoms slowed down. I honestly can say they helped alot.

May 26
A MyLupusTeam Member

Thanks, Calli, I have been having more good days lately. You know how that goes, though--just when we think that, something else pops up! πŸ˜‚πŸ’œ

May 31
A MyLupusTeam Member

@CherlisaLilTrubbleSmith--That's great to hear it helped you, Cherlisa. I see that it's an omega-3 fatty acid fish oil supplement. Another way to get omega-3s is by eating flaxseeds, chia seeds, and walnuts, FYI.

May 27
A MyLupusTeam Member

CherlisaLilTrubbleSmith....Thank you, I will definitely look into this!πŸ₯°

May 26 (edited)
MyLupusTeam

How are you managing to stay so upbeat about all of this? πŸ’ͺ The connection between hormonal changes and lupus flares is very real, and you are definitely not alone in experiencing this. Hormonal shifts during menopause are a well-known flare trigger, and many MyLupusTeam members have shared similar experiences.

As one Show Full Answer

How are you managing to stay so upbeat about all of this? πŸ’ͺ The connection between hormonal changes and lupus flares is very real, and you are definitely not alone in experiencing this. Hormonal shifts during menopause are a well-known flare trigger, and many MyLupusTeam members have shared similar experiences.

As one MyLupusTeam member put it, "Hormone shifts seem to trigger flares β€” it got really crazy when I started going through menopause." The nerve-related symptoms you're describing β€” the stabbing ear pain, electric shock sensations, and pulsing pain β€” can be linked to lupus-related inflammation affecting the nervous system. It's really important to flag these specific symptoms to your rheumatologist as soon as possible, as they may need to adjust your treatment plan.

Here are some general tips that may help during this transition:

- Track your triggers β€” Keep a symptom diary to identify patterns between hormonal changes and flares
- Talk to your doctor about Hormone Replacement Therapy (HRT) β€” It can help some people, but it isn't suitable for everyone with lupus as it can sometimes trigger flares or increase other risks
- Protect your joints β€” Gentle, low-impact movement like swimming has helped many MyLupusTeam members manage joint pain
- Stress management β€” Stress can worsen flares, so finding calming strategies like meditation or gentle yoga may help
- Sun protection β€” UV exposure can worsen lupus symptoms, so staying protected is key The most important step right now is speaking with your rheumatologist about the nerve symptoms specifically. Those sensations deserve prompt medical attention to make sure your current treatment is keeping inflammation properly managed during this hormonal transition. You've got this! 🌟

May 26

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