Scalp pain, tenderness, and hair loss are real and common experiences for people with lupus. A MyLupusTeam member shared, "My scalp sores are tender to touch," while another described red, open sores that scab over and get disturbed just from brushing hair. So if this sounds familiar, you're definitely not alone.
Lupus can Show Full Answer
Scalp pain, tenderness, and hair loss are real and common experiences for people with lupus. A MyLupusTeam member shared, "My scalp sores are tender to touch," while another described red, open sores that scab over and get disturbed just from brushing hair. So if this sounds familiar, you're definitely not alone.
Lupus can affect the scalp in a few ways:
- Discoid lupus causes thick, scaly, coin-shaped lesions on the scalp that can scar and block hair follicles
- Scarring from these lesions can lead to permanent hair loss in affected areas
- Photosensitivity can trigger flares that worsen scalp symptoms
- Some lupus medications (like steroids or immunosuppressants) can also contribute to hair loss Here are some ways to help manage scalp pain and protect hair:
- Protect from the sun by wearing a wide-brimmed hat and applying sunscreen along the hairline and any thinning areas
- Ask your doctor about topical treatments — some members have been prescribed corticosteroid solutions applied directly to the scalp
- Wear looser hairstyles to reduce tension and minimize additional hair loss
- Discuss pain relief options with your rheumatologist, such as NSAIDs or acetaminophen (especially if kidney involvement is a concern)
It's worth bringing these symptoms up with your rheumatologist, as they can help identify whether it's directly lupus-related and find the right treatment plan for you.
June 9
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