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A MyLupusTeam Member asked a question πŸ’­
Higbee, MO

Any suggestions welcome. This flare has been the longest. My skin started itchy but now hurts. I've tried numerous creams, both from Dr. And otc... tons of lotions. By skin is dry and almost leather like. Not to mention the embarrassment

June 18
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Reactions
A MyLupusTeam Member

@A MyLupusTeam Member When I get these dry itchy rashes I use castor oil. It has no perfumes, or other toxic chemicals and has been very helpful. Just make sure that it’s organic. Keep us updated. Happy Thursday πŸ’œ

June 18
A MyLupusTeam Member

I’m literally having the same thing right now. Every time one spot clears up another one starts. Besides the steroid creams from the dr. I don’t know what to do. If I find anything new I will let you know.

June 19
A MyLupusTeam Member

I'm sure you are avoiding UV exposure and using SPF 70 protection now, which should help prevent worsening. You might consider dairy elimination, as I've seen a few patients' rashes clear up rapidly this way. Good luck, and please keep us posted.😘

June 18
MyLupusTeam

Dealing with a prolonged skin flare that's moved from itchy to painful β€” and that leathery texture β€” sounds really exhausting and frustrating. There's absolutely no need to feel embarrassed, so many people with lupus go through this. πŸ’™

Since creams and lotions haven't been working, it may be time to explore other treatment Show Full Answer

Dealing with a prolonged skin flare that's moved from itchy to painful β€” and that leathery texture β€” sounds really exhausting and frustrating. There's absolutely no need to feel embarrassed, so many people with lupus go through this. πŸ’™

Since creams and lotions haven't been working, it may be time to explore other treatment options with your doctor. Some things worth discussing include:

- Prescription topical steroids like clobetasol propionate, which some MyLupusTeam members have found very effective (typically used in two-week cycles)
- Oral steroids for more stubborn flares that don't respond to topical treatments
- Injectable medications like omalizumab (Xolair), which one MyLupusTeam member described as "like a miracle" after years of suffering
- Antimalarial medications or immunosuppressants to help control the underlying flare In the meantime, a few things that may help with comfort:

- Switch to fragrance-free detergents and personal care products
- Avoid synthetic fabrics β€” breathable cotton or silk are gentler on sensitive skin
- Skip fabric softeners, which can irritate dry skin
- Consider whether hard water could be a factor β€” a water softener has helped some MyLupusTeam members

Since the pain and skin changes have been going on for weeks, it's really worth going back to your doctor. This could signal that the flare needs a stronger treatment approach.

June 18
A MyLupusTeam Member

Now I'm starting to understand why my hands and skin get rashy... Wow and it's been happening for years and now I'm going to see a dermatologist... Sending you lots of love and healing πŸ’œ

June 20

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