I have cutaneous lupus also, since March of this year. I'm on hydroxychloroquine, since 4.6. It takes 3 to 6 months to fully start working. Dermatologist gave me triamcinolone steroid cream to help. Works good. Just remember it's a steroid, so don't use too much a day. Stay with what dr recommends.
Aveeno has oatmeal bath, and for me it works really well to calm the skin. Just don't use hot water, warm is better.
Also both Vanicream or Cerave moisturizing creams, both in big tub really helps.
August 25
that happened to me. My doctor prescribed a cream use as needed
I know it starts with a T. I will try and look to see if I can find it hopefully it goes away soon 🙏🏾
August 25
Dealing with widespread rashes and intense itching sounds really exhausting — and it's completely valid to want relief as soon as possible. Here's a breakdown of both medical treatments and at-home strategies that may help.
Medical Treatments (talk to your doctor about these):
- Topical steroids (creams or gels) to reduce Show Full Answer
Dealing with widespread rashes and intense itching sounds really exhausting — and it's completely valid to want relief as soon as possible. Here's a breakdown of both medical treatments and at-home strategies that may help.
Medical Treatments (talk to your doctor about these):
- Topical steroids (creams or gels) to reduce inflammation in specific areas
- Antimalarial medications like hydroxychloroquine (Plaquenil) to protect skin and reduce flares
- Calcineurin inhibitors (immune-calming creams) to ease skin inflammation
- Oral steroids like prednisone during severe flare-ups
- Biologics like omalizumab (Xolair) — one MyLupusTeam member shared it helped "like a miracle" after years of suffering
- Immunosuppressants to calm the immune system overall At-Home Relief Options:
- Apply ice packs or ice in a bag directly to itchy areas
- Use compression sleeves or leggings on affected limbs
- Take cool (not cold) oatmeal baths to soothe irritated skin
- Try over-the-counter antihistamines like cetirizine (Zyrtec) or diphenhydramine (Benadryl) — but check with your doctor first for interactions
- Apply witch hazel, aloe vera gel, or shea butter to affected areas
- Use hydrocortisone cream on specific spots
- Moisturize regularly to prevent dryness
Sun Protection is Key:
Since sun exposure can seriously worsen rashes and itching, use a broad-spectrum SPF 60+ sunscreen, wear protective clothing, and avoid peak sun hours.
Always loop in your rheumatologist or dermatologist before starting new treatments — even over-the-counter ones — to make sure nothing interferes with your current medications.
August 24
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