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Real members of MyLupusTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

The Lupus Foundation of America is aware of the potential use of hydroxychloroquine (Plaquenil) and chloroquine (Aralen) for the treatment of coronavirus (COVID-19). This means that these drugs may be in high demand in the coming weeks
We are actively working with our medical and scientific advisors, other patient groups, partners, and the federal government to take steps that ensure people with lupus will be protected from a disruption in access to critical medications. Many hospitals and… read more

March 20, 2020
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Answer Summary

Members expressed deep concern about maintaining access to hydroxychloroquine (Plaquenil) amid COVID-19, sharing both worry and faith that... Read more

Members expressed deep concern about maintaining access to hydroxychloroquine (Plaquenil) amid COVID-19, sharing both worry and faith that their essential lupus medication would remain available. Several members offered practical advice, including calling local representatives or governors to advocate for medication access, using GoodRx to reduce out-of-pocket costs, and contacting pharmacies early to ensure timely refills before running out. A recurring theme was trust in both God and the lupus community, with members encouraging each other to stay safe, be proactive about securing refills, and support one another through the uncertainty.

A MyLupusTeam Member

Tests need to be done by the FRA before the medication can be used for the virus.

March 20, 2020
A MyLupusTeam Member

I dont take plaquenil. Does everyone here in this community take it? I try mainly herbal immune support and gabapentin for pain, if I am having pain that day.

I met a wonderful lady in Wyoming, that has helped me. She is a Lupus sufferer. If anyone wants her info text me at (Phone number can only be seen by the question and answer creators), BUT PLEASE PREFACE WITH THE FACT YOU ARE IN THIS GROUP, so i won't disregard your text.

Are we allowed to share company names of people that help Lupus sufferers?

March 21, 2020
A MyLupusTeam Member

Yes we need to make sure people That use everyday will be able to obtain

March 20, 2020
A MyLupusTeam Member

It is so scary. I sure hope They prioritize us first. We need it for our daily lives. 🙏🏼

March 20, 2020
A MyLupusTeam Member

I went to go get the rest of mine but have to wait til a week before i run out to be able to order the rest. They said they dont have a shortage yet !

March 20, 2020

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