First of all, take a breath — feeling lost and overwhelmed three months in is completely normal, and it's great that you're preparing questions ahead of Monday. You deserve clear answers, and asking the right questions is the best way to get them.
Here are some important questions to bring to your appointment: About your Show Full Answer
First of all, take a breath — feeling lost and overwhelmed three months in is completely normal, and it's great that you're preparing questions ahead of Monday. You deserve clear answers, and asking the right questions is the best way to get them.
Here are some important questions to bring to your appointment: About your diagnosis:
- What type of lupus do I have?
- Which of my test results confirmed this, and what do they mean?
- Are there any symptoms I should watch out for as things progress?
About your medication (Mycophenolate):
- Why was this medication chosen for me specifically?
- What is it supposed to help with?
- How will we know if it's working?
- What side effects should I watch for?
- Are there foods, supplements, or over-the-counter medications I should avoid while taking it?
About your care going forward:
- How often will we meet?
- What symptoms should prompt me to call you between appointments?
- What do the next few weeks and months look like for me? It also helps to write down any symptoms you've noticed since your diagnosis — even small ones — and bring that list with you. If you tend to forget things when you're nervous (who doesn't?), consider bringing a trusted friend or family member to help you remember what's discussed.
You are absolutely not alone in this, and getting these answers is a great first step.
September 19
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